Vivian going for a stroll with her Daddyman and her nurses Kara and Ronelle
Vivian was very alert today. She said "Ow" a lot, but her complaints seemed to rooted in annoyance rather than in pain. While in ICU Vivian has to have an oxygen monitor on her finger and a blood pressure cuff on her leg, and she abhors both.
Vivian was out of bed once today for a promenade around the PICU in her stroller. Vivian seemed to enjoy her outing and fell asleep in her stroller after we returned to her room. Unfortunately when it was time for a blood draw to check on Vivian's antibiotic level, the nurse discovered that Vivian's port access had dislodged so we had to move her back into her bed for it to be replaced. Afterward it took us several hours to get Vivian to settle down and go to sleep again.
The walk wore Vivian out!
Finally Vivian went back to sleep after moving back to her bed and having her blood drawn
The orthopedist who performed Vivian's second surgery felt that an infection in the hardware in Vivian's arm could be responsible for the high fever that landed her in the ICU as well as the softening of her bones that led to the loosening of her initial surgical screws. Cultures of fluids drawn during the second surgery have not yielded any positive signs of infection, but such results could be tainted by the strong antibiotics Vivian has been receiving. To be on the safe side, the orthopedist, in consultation with a pediatric infectious diseases specialist, wants Vivian to continue on IV antibiotics for six weeks (ugh). Vivian's doctors are trying to establish an effective dosing schedule before they discharge her.
Please pray that Vivian's doctors can decide on the proper course of antibiotic therapy. Pray that Vivian would regain strength in her legs quickly as she has had little opportunity to rehabilitate them with a physical therapist while in the PICU. Pray that the C Diff gastronomical infection that Vivian previously tested positive for is gone. Pray that Robert and I are able to work with the hospital social worker to organize adequate and appropriate help for Vivian's return home; I am especially concerned that we be able to keep Vivian safe since she will not yet be steady on her feet should she decide to get out of bed. Pray that Vivian can ignore the band we have around her waist to prevent her access to her port and g-button; right now she keeps imploring us to "take off that seat belt." Praise God that Vivian's pain is abating and that her funny little personality continues to shine through her discomfort.
Thank you for your diligence in praying for Vivian and encouraging Robert and me. You have made such a huge difference during this arduous journey.
"And He said unto me, 'My grace is sufficient for thee: for my strength is made perfect in weakness.' Most gladly therefore will I rather glory in my infirmities, that the power of Christ may rest upon me." II Corinthians 12:9
Married for 27 years to Robert, three kids: Will (23), Vivian (20) and Dots (17) ~~~~
Majored in mathematics at SMU, taught elementary school for six years before Will was born, currently tutoring math ~~~~
Things I enjoy: playing duplicate bridge, working NY Times crossword puzzles, reading good books, entertaining, visiting with friends, planning trips, traveling, playing board games, spending time with family, cooking, keeping up with old friends ~~~ happy to correspond with other parents about raising a child with special needs
I unintentionally contaminated all of the pictures on my blog when I changed my privacy settings on Flickr. I am working backwards to correct them all, but it is quite a tedious procedure! If you encounter a post with error messages from Flickr where the pictures should be, then I haven't gotten to that post yet. Please let me know and I will update it immediately. Thanks for your patience!