Vivian alternated between wakeful periods of agitation and peaceful interludes of sleep. The wakeful periods required that Robert or I lie next to Vivian and hold her hands and restrain her legs. The times of sleep demanded that we not move from our position next to her lest she awaken. When Vivian was awake Robert and I tried to sit her up and get her to interact with us, but that was maddeningly difficult and disheartening. Vivian could utter a word or two, but it took much prompting and waiting to elicit a response. On the bright side, Vivian understood much more than she was able to express. She even turned her head toward me and touched my cheek with her lips when I asked her to give me a kiss.
Vivian was able to swallow a few sips of ice water through a straw and she ate a single bite of yogurt. After that, though, she clamped her mouth shut as tightly as she could and shook her head "no" when we tried to get her to open up.
Trying to get Vivian into her stroller did not go very well. She was very, very wobbly when we try to sit her up and once we transferred her to the stroller, she arched her back and wouldn't sit in it, so we had to return her to the bed.
Robert reported that tonight he put Vivian's physical therapy boots on her feet for several hours. Vivian tolerated them while she slept, but when she woke up, she began grabbing at them and thrashing around. Robert asked her what was wrong, and Vivian replied, "Take them off!"
I don't know what to think at this point. I am alarmed by some of Vivian's behaviors but mildly encouraged by others. Progress with Vivian is always painfully slow, so I likely would not be as apprehensive about the pace of things if her doctors weren't so concerned. I am desperate to be out of that PICU, but I don't see how we could manage Vivian at home or in rehab if we don't get her agitation and unrest under control.
Please pray for comfort and peace for Vivian. Pray that Vivian's speech and motor skills would show marked improvement. Pray that the C. Diff infection in Vivian's GI tract would clear up. Pray for healing for Vivian's brain. Lastly ask God to continue to give Robert and me strength and peace that we might be equipped for the tasks ahead of us.
"Answer me, O Lord, out of the goodness of your love; in your great mercy turn to me." Psalm 69:16
Married for 27 years to Robert, three kids: Will (23), Vivian (20) and Dots (17) ~~~~
Majored in mathematics at SMU, taught elementary school for six years before Will was born, currently tutoring math ~~~~
Things I enjoy: playing duplicate bridge, working NY Times crossword puzzles, reading good books, entertaining, visiting with friends, planning trips, traveling, playing board games, spending time with family, cooking, keeping up with old friends ~~~ happy to correspond with other parents about raising a child with special needs
I unintentionally contaminated all of the pictures on my blog when I changed my privacy settings on Flickr. I am working backwards to correct them all, but it is quite a tedious procedure! If you encounter a post with error messages from Flickr where the pictures should be, then I haven't gotten to that post yet. Please let me know and I will update it immediately. Thanks for your patience!