Sunday, July 26, 2009

Updates.

Many thanks for all of the kind and compassionate expressions of support after my last post. They meant a lot to me and really bolstered my faltering spirits.

Vivian's nighttime loss of balance has largely gone away - hooray! She's still experiencing some drowsiness and showing some aggressive tendencies, but hopefully we'll begin to see improvement in those areas as well.

In response to an inquiry, Vivian's stroller is a Maclaren Major Elite (sometimes called the Maclaren Special Needs Stroller). I bought it about a year and a half ago online for about $400. Viivan's doctor wrote a prescription for a "wheelchair for age," and I submitted that with the receipt to our health insurance company and received reimbursement. While Vivian doesn't need the stroller for mobility issues, I think sometimes it makes her feel secure when we are in crowded places. It also works better than dragging her when she's not being compliant!

Back in March I asked for prayers for my cousin Wendy's nine-year-old daughter Katie who was diagnosed with a brain tumor. Katie received six weeks of daily radiation which were successful in shrinking the tumor and relieving its effects (headaches, slurred speech, facial paralysis, balance issues, etc.).

A few weeks ago Wendy's family was treated to a week-long retreat in Rosemary Beach, Florida that was sponsored by Lighthouse Ministries. While they were there, Katie's symptoms began to return, and an emergency MRI on Friday showed that the tumor had spread down into her spinal cord and was very aggressive.

We are heartbroken at this news and would covet your prayers for Katie.

9 comments:

Maggie said...

I'm so glad to hear Vivian's doing better, but so sad to hear about Katie. Katie and her family will be in my prayers in the days to come. They have such a hard road to walk. Prayers for you all too.

Rachel said...

I'm glad to hear that Vivian is doing better. However, hearing about Katie is just heartbreaking. I will be thinking of her and my family.

Alexis said...

Vivian and Katie are both in my prayers. You continue to amaze me with your strength and patience, and I know that Katie's family could use that strength during this tough time.

JoAnn said...

Oh, my heart is just aching for Katie and your entire family. Just too sad for words.

JMW said...

Such sad news for Katie and her family. I will make sure to include her and her family in my prayers. Happy to hear that there have been improvements for Vivian.

cancersucks said...

Thoughts and prayers with sweet Katie and her family & friends.

Courtney said...

Eloise~
Glad Vivian is improving. Hope she continues to get better with her aggression.
I am praying for Katie and your family!

Punky & Wally Penberthy said...

Eloise, As soon as we returned from a trip to Maine, we have had nonstop company. Last week Becky's three youngest were here. Needless to say I haven't read your blog in weeks. Prayers for Vivian's continued improvement are being said. Whose child is Wendy? I can't imagine facing such a situation.

Have loved your blog, recipes, etc.

Punky

3 Peanuts said...

Oh Eloise,

I am so saddened by this news. I will certainly keep both Katie and Vivian in my prayers.

BIG hugs,
Kim